KaylaRossPerryMemorialFund

KaylaRossPerryMemorialFund

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The Scoop

Who we Are

 

Kayla Ross Perry Memorial  Foundation (KRPMF) was incorporated in the State of Maryland and approved as 501C3 non profit organization in July 2019 to raise awareness on Epilepsy, provide scholarships and sponsor events that highlight the creative arts for healing.

Epilepsy Awareness; Scholarships; Creative Arts

 

The mission of KRPMF is to provide scholarships for young adults aspiring to attend college; to  raise awareness about Epilepsy and Sudden Unexpected Death in Epilepsy(SUDEP); to provide information on the availability of community resources for those living with Epilepsy and to sponsor activities that highlight the creative arts for healing.

What you can do

With your financial support or by volunteering your time, the KRPMF will care and connect with our community to support young adults and their families. Let's put an #ENDTOEPILEPSYANDSUDEP

Help Our Cause

Your support and contributions will enable us to meet our goals and improve conditions. Your generous donation will fund our mission.

Pay with PayPal or a debit/credit card

Kayla's Story

 

Kayla Ross is the youngest of three children born to the union of Bernard and Edana Perry, Her two siblings are TaelorNecolle and Christian Bernard. At the age of eleven Kayla was diagnosed with Juvenile-Myoclonic Epilepsy(JME), triggered by lack of sleep. Kayla and her family were set on ensuring that her life was not defined by the disease. Her story is far more than that of a fight against epilepsy. Kayla’s story, her song, is about love, faith, immeasurable strength, resilience, and defiance. Kayla’s song is a song of “in spite of” and no!


Growing up, Kayla sang in the children’s choir, she danced, tumbled, and played soccer. Kayla was an active member of the youth and young adult ministry at her church, there she also soared with the dance ministry, was a member of the Impact Teen Praise Team and sang in the Jr. Voices of Calvary youth choir. Kayla sang in the Washington Performing Arts - Children of the Gospel choir where she had the opportunity to sing with the choir for President Obama in 2009. Kayla was a singer, her whole life was a song.


Kayla’s love for music and her beautiful voice was one of the divine seeds planted within her being. Her voice was inspired by the music she loved; jazz, r&b, neo-soul, and gospel. She saw the world through music, from the melodies of soul to the rhythm of gogo, top 40, dance and trap music.


As a young woman, Kayla graduated from Montgomery College with her Associate's Degree. In March of 2017, she landed a position with HCD International as a Community Outreach Representative. She soon emerged as a leader among her colleagues, all while pursuing a certification in project management.


Kayla was stubborn, she was committed to living life on her terms, even if that meant bumping heads with the people she loved the most, her family. Kayla loved her family with everything in her.


We are committed to continuing Kayla’s legacy of strength, resilience, defiance, and deep love. On July 6, 2017, at the vibrant age of 26 years old, Kayla passed away suddenly from complications associated with Epilepsy-  SUDEP (Sudden Unexpected Death from Epilepsy).  


Her transition has been difficult for her family, friends and village.  Kayla touched many lives and her family has decided to celebrate her life, pay it forward and give back to the community. Her family wants to encourage others to never give up despite life's challenges!


The KRP Memorial Scholarship was established at Greater MT.Calvary Holy Church in 2017 to honor the life and legacy of Kayla Ross Perry and to provide funding for college student(s) who pursue the creative arts.  In August 2018, the first scholarship was awarded to Darin Bess. In July 2019, the next scholarship was awarded to Joelle Green. #kaylastrong

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What Fuels our Passion

epilespy and SUDEP

 What is Epilepsy? 

  • Epilepsy is the fourth most common neurological disorder and affects people of all ages.
  • Epilepsy means the same thing as "seizure disorders."
  • Epilepsy is characterized by unpredictable seizures and can cause other health problems.
  • Epilepsy is a spectrum condition with a wide range of seizure types and control varying from person-to-person.
  • Public misunderstandings of epilepsy cause challenges that are often worse than the seizures.

Statistics on Epilepsy


  • 65 MILLION: Number of people around the world who have epilepsy.
  • 3.4 MILLION: Number of people in the United States who have epilepsy.
  • 470,000: Number of children in the United States who have epilepsy.
  • 1 IN 26 people in the United States will develop epilepsy at some point in their lifetime.


What is SUDEP?


SUDEP is the sudden, unexpected death of someone with epilepsy, who was otherwise healthy. In SUDEP cases, no other cause of death is found when an autopsy is done. Each year, about 1 in 1,000 people with epilepsy die from SUDEP. This is the leading cause of death in people with uncontrolled seizures.  For more information click on the links below.


https://www.epilepsy.com/learn 


https://www.epilepsy.com/make-difference/public-awareness/aimforzero-striving-toward-future-free-sudden-unexpected-death 


http://knowsudepnow.org/


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Whats Going On !

Virtual KAYDAy 2020- May 2nd 11am to 12 noon

Virtual KAYDAy 2020- May 2nd 11am to 12 noon

Virtual KAYDAy 2020- May 2nd 11am to 12 noon

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 In honor of our daughter Kayla's life. and legacy., join our watch Party for Inspirationa Songs, Zumba Sessions and Epilepsy Education . Go to 

https://www.facebook.com/kaylastrong2017   or the Kayla Ross Perry Memorial Foundation FB Page.     


Past Events

Virtual KAYDAy 2020- May 2nd 11am to 12 noon

Virtual KAYDAy 2020- May 2nd 11am to 12 noon

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Saturday, May 4th we enjoyed a free community event that  included Health Tips, Spoken Word, Music, Zumba Sessions and Kids activities. 

KAYDAY 2020 Video

 2020 Virtual Edition - View the Video Here

To view on YouTube Click on the link 

https://www.youtube.com/watch?v=Td9SIkEGqMs

2O2O Essay Contest Winner

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Ms. Christen Carpenter - 2020 KRPMF Student Essay Contest winner

Congratulations! Christen is a  2020 graduating senior at the Academy of Health Sciences at Prince George's Community College. She plans to attend  a 4 year university in the fall. When Christen was diagnosed with Epilepsy in 2019, she began sharing her  story on her Instagram account to advocate and spread awareness about epilepsy, seizures, SUDEP and Seizure First Aid..  We salute Christen and agree with her slogan, " I refuse to allow Epilepsy to keep me from reaching my goal of obtaining my degree in Medical Laboratory Science and working towards a career as a Medical Laboratory Scientist.”  . Follow Christen on her Instagram page @4ever_dcu.. We will  be following Christen as she pursues her goal.  Go Christen!

2020 Essay Contest

KRPMF Student Essay $500 Contest- March 2020

  

Apply now to the KRPMF Essay Contest! Calling Teens living with Epilepsy between the ages of 14 and 18 years of age. Deadline for Submission is Friday, April 17, 2020. Essay question to answer, “In 500 words ( double spaced) tell us what problems you have faced amongst classmates/peers with your Epilepsy and how you would reduce their fears and prejudices? 

DEADLINE FOR SUBMISSION IS FRIDAY, APRIL 17, 2020

Winner will recieve $500

Click on the link for more information and to apply. 

https://form.jotform.com/ejperry/krpmf-student-essay-entry-and-submi 



DEADLINE is APRIL 17, 2020

RULES


Contact Us

Drop us a line!

Kayla Ross Perry Memorial Foundation, Inc

240-633-7317